I was given a list of questions to answer and since that thread is so long now its confusing I thought I'd just start a new one.
1) Why do you think society in general rejects people like you? I understand there are ways that systems are set up that are either not ADD-friendly at all or are at least are set up in a way that is easier for nonADD people to work within the framework. But in our situation and from a lot of what I am reading about in other people's stories here, it is usually the ADD mate who is most beloved by others. They are generally easy going, frequently very funny, non judgemental, and many other qualities that seem to make them a person that others love to be around.
I know if I so much as say a negative word about my husband's forgetfulness or overcommiting himself there are usually ppl jumping right to his defense....he is busy, he is so much more helpful than a lot of husbands, and on and on. It is true. I am married to a great guy, but sometimes the greatness is easiest to see from the outside looking in because none of those ppl are picking up the slack for him when he has overcommitted himself, doesn't notice the mess he makes everywhere he goes, or are married to a man who regularly tells you he will do things that he never gets around to do....in fact sometimes the reason is doesn't get to what he promised me is because he ALSO promised one of those other ppl to do something, and he feels he HAS to do that whereas what he is supposed to do at home can wait until *later*.
1)
The whole culture and society we live is set up for Nuero Typical people. Everyone else is “different” or “special”.
An ADDer learns early on in grade school that she doesn’t belong. Doesn’t fit in. In listening to ADDers talk about their childhoods you will often hear stories of how they felt that they must have been aliens from another planet they struggled so much with how different they were. Most children with ADD do not have many friends if any at all.
Ask any parent with an ADD child and they will tell you how hard it is to get the school system to make even minor accommodations for their children, to even accept the diagnosis, to follow 501 and IEP plans. Never mind having the child be happily involved in play and sports and other activities with other children. A child with ADD will likely be suffering from anxiety and depression before their adult teeth gave all grown in.
If you think society tolerates people who are different, think about what it’s like to be “tolerated”.
You know how therapists and support groups will have people spend the day blindfolded to see what it is like to be blind and such? Spend the day shopping and handing out resumes at the mall. Wear clothes that don’t quite match¸ talk a little too fast and look everywhere but in people’s eyes. Leave your wallet at home and fill your purse with random items, so that when you go to make your purchase, you will have to rifle through your purse and then tell them you left your wallet at home. When handing out resumes pretend you don’t have your phone number memorized and read it from your resume to them. See how long it takes before you start feeling like the freak everyone is treating you like.
We are expected to be normal. To think, feeling, organize and socialize in a certain way or else there’s something wrong with us. Something that needs medication and therapy to make us more normal.
ADDers in support groups and on forums will confess that they feel like they are going through life playing a role. A quick look at the ADDforums site that is full of ADDers shows dozens of threads about how people there feel they are pretending to be an adult, while in their 40s! That they are faking it, playing at being normal so they can hold down a job, keep friends and make their families happy.
The goals we have as a society are not ADD friendly. Have a nice house that looks like Martha Stewart lives there, have a career, make lots of money, be successful, be perfect. You see normal women breaking down on Oprah because they can’t keep it together how do you think a woman like me feels?
Now about the close circle of friends. Certainly there are positive traits to ADD that can draw us friends. Thank the lord! But it also depends on your type of ADD. A hyperactive male can get away with being the outgoing A type man and have many friends. But what about my hubby? The inattentive, quiet, thoughtful, introverted, nerdy man? He is rejected not just by society but by the people close to him for not being the kind of man we expect men to be.
Also while your hubby does have friends and family, even people who stick up for him. How many of them really know him? How many know how much he struggles, knows his failings? I bet they are just buying in to the act, the role he plays for them to have their acceptance. He’s good at playing at being a good guy, at being normal enough to be accepted by them. He can downplay his ADD and pass it off as something that isn’t a brain disorder or mental illness. If they really knew him as you do it would be a different story wouldn’t it? If he told those people that he really does have a brain disorder how many would stay his friends? How many would accept him?
I have many friends and acquaintances. But none of them are close friends. I have no best friend. I have to keep a certain distance with them, hold them at arm’s length. If I were to confess to my “friends” that the other day I pulled out a bowl to grate cheese into and placed it on the counter, then minutes later found myself grating cheese onto the cutting board with the bowl sitting right beside it, they would look at me very strangely and change the subject. If I made a point of answering their “How was you day?” truthfully, telling them about laundry pilling up, forgetting a doctors appointment, forgetting to buy milk two days in a row, not getting around to cleaning up the dogs poop for three days etc etc it wouldn’t be that long before I no longer was invited to join them for outings or to come over to their homes.
I could never tell my mother in law that three time last month I forgot to send my son off to school with a lunch and had to swing by with McDonalds. I’d never hear the end of it and the whole family would be talking about it.
Every time my hubby and I leave the house we have to play a part. Pretend to be as normal as we can all day just to get through that day. By the time we get home we are exhausted, anxiety ridden and strung out from the effort of trying to be more organized, better at socializing, more together, more mature than we really are. And there is little solace at home, as there are children to acre for, pets to care for, a lawn that needs mowing, dinner to be made, bills to be paid and friends and family knocking on the door. That’s when hubby’s meds wear off and I start to shake from exhaustion and realise I hadn’t eaten all day.
Are those of us with neurological disorders and mental illnesses accepted by society? If we were would they need to put out ads and awareness campaigns like these?
http://www.youtube.com/watch?v=Dw_I-G1smoo&feature=related
http://www.youtube.com/watch?v=xIZ9FmD0o9k
No I am not accepted, not for who I am.
2) Do you believe that women with ADD are less accepted than men are?
I can see where in a traditional model for homelife, a woman with ADD could be at a real disadvantage. The picture of the woman keeping all the balls in the air, scheduling everyone's different events, while keeping a perfect home could definitely be challenging for someone with attention or detail-oriented challenges. BUT when
you hear ppl speak about a man with ADD who isn't fulfilling his traditional roles it seems like much harsher words are used: lazy, a bum, a jerk, unwilling to work, etc Whereas women seem to get described as sillly or flighty. Now I am not IN ANY WAY saying I would want to be described as silly or flighty (esp unjustified), but I'd prefer it to being called a bum.
2)
I think both have it as hard but in different ways. There are different expectations put on men and women. It also depends on the kind of ADD you have too. My hubby says he wishes he was more hyper because hyper ADD men are more accepted. I say I wish I was less hyper because people think inattentive women are sweet, polite, and shy and quiet … all “good” qualities. A woman who talks a lot and who is forward and a-type is not as accepted.
I’ll take being called a lazy bum over being called a stupid bitch any day though.
3) From where does the deep seated focus on doing things FOR YOU come from?
I have heard this type of comment from several ADD friends. For example one has previously functioned well on meds. He decided to go off of them because he wanted to control his ADD on his own with no chemical help. He has been dreadfully unsuccessful by any interpretation of the phrase, and he finally admits he needs the meds. He is ready to go back on them (or so he says) but his mother has been nagging him to get back on them as he has spiralled further and further downward without them. He is refusing to go on them until she stops asking him to because until that happens, he says if he goes back on the meds then it isn't for him it is for her? My response is ??? Why isn't it possible to just have the same goal or desire for yourself as another person?
What is wrong with doing something for no real other reason than that it is good for your mate? I don't like making coffee in the morning. I don't drink the stuff and would prefer if my ADD husband did not have the caffeine, but he likes to wake up to coffee in the morning and for literally no other reason than I like that it makes him happy, I do it. I'm sure there are things that he does for me in the same way. People who love eachother ENJOY making eachother happy.
I expected to have a happy marriage because based on what I knew of each of us before I accepted the proposal, I believed we'd both put in the work to make our marriage happy because we love eachother. That has proven to be true, and as a matter of fact I honestly believe my husband would have gone undiagnosed his entire life had he not gotten married, but because his ADD symptoms were interfering with our happiness (we'd started to argue a lot about him not doing what he said he would), he took action to find out what the problem was. He realized no matter how much he tried, he wasn't able to overcome it on his own.
I don't see those types of expectations....that someone is going to love you and have your back and be your soft place to fall....are at all negatives in a marriage. I think it is good to speak up when either you aren't providing that for the other one. That is the only way it can get corrected. I do believe that requires you to talk honestly about what each of you are looking for in a mate, but if you say you are committed to something, I can't imagine what would be wrong with expecting that to happen.
3)
Its juts the way my brain works. It is harder to get it fired up and running. I need to have a real BIG NEED for myself to get my ass out of my chair. Sure I do things for other people. I do stuff for my hubby and he does things for me. We both do stuff for our kids. All out of love and wanting them to be happy.
But I think we are drawing from a well that is not as deep as other people. Our gas tanks aren’t as large. They run out faster.
http://www.youtube.com/watch?v=q3VuV5Jvazs
http://www.youtube.com/watch?v=O5e5Ea8xFzc
There is a deficit in my internal reward system. I don’t get the feel good fuzzies that you do for doing good deeds. Mostly I just get tired.
I’m going to quote from someone on another forum here because she said it so well:
“ … the land of knowing is on one side and the island of doing on another - NTers walk from one to the other on dry land I am swimming upstream though tides of irrelevant stimuli I can't ignore ebbing and flowing through my brain and I am often swept away with the irrelevant crap and either end up on the wrong island of action or never reach the island at all –This irrelevant stimuli is both internal and external – No wonder the NTers are better at controlling their out put , They reach the desired island of action more often, because when they tell their brain to stop letting the distracting stimuli waters flow so they can focus on which island of action they want to land upon their brain does so willingly . . .
Most attribute the ADD to executive function - I attribute it to the executive secretary - she decides who gets in to see the boss - My secretary either lets every one and their dog in so my office is so crowded I can’t hear myself think literally or she will not let any one in or me out thus isolating me from the external world even those parts I need in order to do my job - when she lets in the people I need while keeping out those I do not see I can perform with no problems - I can not filter out some stimuli without filtering it all out - it is an all or nothing deal. . .
I can memorize I simply do not control what I memorize - which is annoying - in other wards if I remember to remember I can remember but I often get bombarded by nine million other things and forget to remember…
Why do you equate 'less successful' with 'less worthy'? Would this mean the profoundly disabled have negative value? I think success has diddly squat to do with worthiness as a human being. Maybe it's a cultural difference. I've not been conditioned to feel morally superior to anyone for something they haven't chosen, like their abilities, and I certainly can't think of any rational reason to.”
Aside from all that. I think NT people see love, affection and caring as something you do. Its an action. You guys are all about action. I’m not saying that’s bad, that is just how it seems to me. If you love someone you do blank.
To the ADD brain, which struggles with action, love is a feeling. It is a state of being. Something you are. I am in love, therefore I love. When you struggle to do anything its hard to impossible the see things like love as actions. If I saw my capacity to love my children based only on what I do and how well I do it I’d hate myself. Because I just can’t DO as well as other women could. But I try my best and love them soooo very, very much.
As soon as someone say “If you loved me you’d do this and this and do it well” I start to panic. Hoops to jump through make me freak out. I’d rather run away screaming than try again and again and wind up not making it through all those hoops.
Thank you very much for responding
Submitted by Aspen on
I am going to take a page from your book and consider what you have to say before responding. I think there is a lot of validity in what you say. I do think a lot of the perspective you are coming from has to do with type and severity of ADD.
I am going to ask my husband what you mentioned about feeling like you are playing a role, but I strongly suspect he's gonna say he is who he is and ppl either like it or not...no biggie to him either way. He is not at all hyperactive and I have at times thought it would be nice if he'd have a little more just for the gumption factor, but from what I read and have seen, it is the hyperactives who suffer the most. I am glad I have an introverted (with a capacity to be up and lively for short periods at a time) inattentive man. I'd describe him as a really cool nerdy type LOL He is gorgeous so that helps ppl be drawn to him I'm sure....not saying it is right but it is true.
He is really a genuinely awesome man, but yes if he was dropping the ball with other ppl the way he does at home, I'm sure there would be some comments and eye rolling :) I find many many men in general drop the ball in the ways that he does, so there is always a lot of sympathy for him.
It does seem than men get
Submitted by Miss Behaven on
It does seem than men get away with dropping the ball (I like that phrase!) than women do. My Hubby can get away with things that I can't!
ADD and action
Submitted by Sueann on
My husband can tell me all day long how wonderful I am and how much he loves me and I don't believe it. I need him to show he loves me by doing things that need to be done. How can I feel loved if he leaves me to do all the work and does not support me? I've already noticed (and commented on) that to ADDers love does not have to equal action, it's a state of being.
How does a person who needs actions to feel loved (and who needs certain actions because she's handicapped) get along with an ADDer who thinks as long as he loves me, he doesn't have to do anything about it? Really, the question sounds argumentative, and you've been all over the idea that just because one partner needs something doesn't mean the other partner has to do it. But does that mean that I just accept that my needs never do get met?
As far as getting out of that chair, that's the hardest thing in the world for me to do because of my bad knees. He is physically capable of doing it, so why shouldn't he?
Ok a few thoughts
Submitted by Aspen on
I get the idea that people with ADD tend to see the rest of us sailing through life 100% successfully. I know that you know this isn't true since you say that you see women breaking down on Oprah because of their stress, but that is the truth. I think we all struggle with balancing our lives and making sure our priorities get met while not giving our lives over to our jobs. Everyone struggles, but I agree that ADD people have an extra obstacle to overcome in the struggle.
In my opinion the world isn't set up in such a way as to be conducive to the life of any human. The fast paced never smell-the-roses type world that is running along at 100 miles and hour isn't good for ANYONE. Yes it is extra hard for anyone who is different, but I believe in this land of chaos and insanity, we all have to create our own island of calm. My husband and I opted out of the rat race. We set up a small business and each work part-time by choice (as we're both very skilled in our chosen fields), we volunteer full time, and we have made the life for ourselves that WE want. Our life is fairly simple and one of our focuses is to travel a lot which we have made it to about 20 countries in the 8.5years we've been married.
Do ppl look at us wierd sometimes? Sure Do we care? Nope because we love the life we have. Plus we get plenty of envying looks too :)
You mention ppl thinking you're wierd if they heard about the cheese grating incident. I honestly think that is some of the shame and frustration from years of struggling with ADD coming out because I don't know a person in the world who doesn't have moments like that. I understand for you it is one of many and that makes it different, but I say laugh about it when you can. Not too long ago during a time of overwhelming busyness and stress, I lost my purse IN MY HOUSE. We looked everywhere, and I seriously mean everywhere. I was frantic and running late for an appt when my husband opened the fridge for something else, and saw my purse neatly tucked next to the milk!!! I had put it *away* in the fridge with the groceries I had brought home. I tell that story all the time......we think it is hilarious. We are all tired and overwhelmed. Please don't think you have to pretend not to be to be accepted!
I talked to my hubby about feeling he is acting a role, and as I suspected he said "No way! Ppl can accept me or not, but here I am". I think that is part of what draws other ppl to him. He is SOO comfortable in his own skin (which has made some necessary ADD related changes a bit harder for him since he likes unconditional acceptance). We are happy with eachother and who we are. We have friends who know us for how we are, and ppl come to talk to him about how he copes with ADD all the time because they are suspecting THEY have it and it is a relief to talk to someone about it. He isn't ashamed of ADD.....he talks about it in regular conversation, which might be why he is doing so well with it. I wish he'd view it as more of a big deal sometimes because then maybe changes would come sooner.
What you said about not having a best friend really resonated with me though because I don't believe he has one now. He kinda expresses different parts of his personality depending on what type of ppl he is around. When around louder, fun types, he is up there laughing and doing karaoke. With quiet science types, he'll talk about black holes for 1/2 an hour. But while he has had ppl he was very close to at various points in his life (his HS friends, college buddies, etc), when he moves on to another phase in his life he seems to leave them behind with little trouble. I do wonder about that a lot. He always makes more friends and will stay in loose touch with the old ones on fb, so I guess he doesn't feel a need for best friends? I don't know but I am going to ask more questions. My close friends are my life and no matter where I go, I never lose touch with them. Curious!
Thank You
Submitted by Hoping4More on
It is posts like this that help me understand what my wife experiences. I am definitely someone who thinks love is expressed by actions, and this helps me understand why it is so difficult for my wife to take action, and also why, when I tell her that I wish she would demonstrate her love by her actions, it only makes the situation worse.
I also notice it takes a lot for my wife to get herself up out of her chair, and I appreciate your sharing that is a typical ADHD behavior. And thanks for mentioning the deficit in internal reward systems. I know that is also true for my wife, as she needs lots of external validation. Something that is difficult for me to give her all the time, because I am SO much of an internal person.
Appreciate Your Honesty
Submitted by Ren on
Thanks for your post and for your honesty. This helps me understand my husband more.
I will say though, that love is a verb. It is an action. And for better or for worse, people know you love them based on what you do, not on how you say you feel. I understand that this is hard for you, since you struggle with action, but it is the truth. I try to explain this to my husband, because he sometimes says, "Our children know I love them," as he sits playing his computer game for the 5th hour in a row while they are hungry or late for one of their activities or something else. Actually, they don't know he loves them. My son is almost 4 and he strongly prefers me to my husband. Why? Because I greet him in the morning, I prepare his meals, I plan his activities, and most of all, I LISTEN to his 3 1/2 year-old ramblings and pointless "Why?" questions and answer them. All of them. He feels listened to. He feels paid attention to. He feels secure. He feels loved. Because I do things to make him feel that way, not just because I feel love for him.
Again, I recognize that actions are hard for ADD people. But diminishing their importance as EVIDENCE of your intentions does no good to yourself or those around you. For those of us on the other end of the "love is a feeling, actions shouldn't matter" relationships, we are lonely, neglected, abandoned, and sad. We need connection, shared experiences, and outward signs that there's something going on in there. And if it gets too lonely, some of us will leave.
Well put, Ren. This is
Submitted by newfdogswife on
Well put, Ren.
This is exactly the reason why my ADHD husband and our daughter don't have a real connection. Growing up, children need actions in order to learn how to feel loved. They are not born feeling love. I believe it must be shown in actions and words. Yes, it is unfortunate that this is hard for ADD people. So much so that I wouldn't be surprised if even the ADDer eventually will become lonely, too. I am sure as they get older chasing that "feeling of love" with every new relationship will soon take its toll.
How about having agreed upon
Submitted by Miss Behaven on
How about having agreed upon ways for your hubbys to show they love you? I think all men not just ADD men have a hard time understanding that doing the dishes equals love but what if it was put on a list?
A love list. An actual physical list he can look at. ADDers need lists we can look at.
5 to 10 things he can do to show his love for you. Everything from making dinner, to taking out the garbage, to rubbing your feet.
Would your hubby's agree to trying to do at least one thing a day if they knew exactly what to do and what it meant to you?
I don't want to be in charge
Submitted by Sueann on
This feeds into the idea that a man is "helping" a woman if he does any housework, just like he's "babysitting" if he's interacting with his own kids.
I want my husband to look at dirty dishes and know they should be washed without being told. I don't want to be in charge of the house and he's just "helping" me. I have no desire to be his mother.
He lives here too. He eats the food and wears the clothes and plays with the pets. Why can't he be equally responsible with me to cook the food, wash the dishes, do the laundry, change the litterbox and walk the dog?
Sorry, I'm just frustrated. We on this board are all about how to talk to our ADDer so we don't damage their fragile self-esteem, how to help them understand what we need, etc. I wish he worried about what it feels like to struggle to get out of a car, and watch him go charging into the house while I'm still struggling to stand up. I want him to love me enough to give me his hand and help me up. But if he doesn't care about me that much, I'm not going to demand that he "fake it." If I have to tell him, it's not love, it's duty.
I'm sorry I don't understand.
Submitted by Miss Behaven on
I'm sorry I don't understand. I am trying. If its not something he thinks up himself its not good enough? Even if he has a disorder that makes it difficult for him to think of it himself? What is wrong with asking for help? Or explaning to your hubby what you need from him to feel loved? Is he to read your mind?
If he "helps" me that means the responsibility belongs to me
Submitted by Sueann on
I don't want him to help me do the dishes. I want him to know they need to be done because he's an adult and we live in the South and if the dishes aren't done, we'll get bugs. I don't want it to be my responsibility to make sure the dishes are done, and I delegate it to him like he's a child. I just want him to know they need be done and do them.
He would help a handicapped stranger that was having trouble getting out of her car, why should I have to remind him that I'd like him to do that for his wife? He pours out help and empathy all day for strangers, why can't I be treated as well as his clients?
When I remind him, it comes across as nagging. If I yelled across our yard "Joe (not his real name), come back here and help me get out" that would make me feel like his mother or his elderly 3rd grade teacher and not a beloved wife. I want him to not want me to struggle. In other words, I actually want my needs and our needs as a family to be something he thinks about.
Sorry if you think that's unrealistic. If ADDers can't do that, I'm not sure I want to be married to one.
I never said it was
Submitted by Miss Behaven on
I never said it was unrealistic.
My brain just works differently, I am simply trying to understand. I don't need my hubby to want to do things for me, so long as he does them! LOL
I am thinking of my mother in law. I will visit her and ask if she needs help with anything and she gets annoyed that I don't magically know what needs to be done and just do it. *sigh*
I understand what you are saying
Submitted by Sueann on
I make a distinction that probably seems like a "distinction without a difference" to an ADDer. There are things you should do just because you live in the world, and things you do because you love your partner.
Things you have to do because you live in the world include going to work, cooking and washing dishes, laundry and child care (not applicable to me, anymore). They are things that just have to be done. Some families are able to have one parent stay home and then that person can do most of that, but the other partner has contribute as well. Not fair for one person to work 40 hours a week and the other to be on duty 168 hours a week. ADDers often do not get this kind of stuff done, and it's really hard on their partners to take up the slack. (Read this board for a while and you'll see how hard it can be.) That's the kind of thing I said I don't care if he wants to do it, just that he does do it.
The other category is things you do because you love your partner. Footrubs, compliments, turning off the computer and listening, holding my yarn while I wind it into balls, whatever. These things are ways to express your love, they don't benefit you directly. For me, it would be him helping me out of the car and slowing his walking pace to match mine instead of bounding into the house while I'm still struggling to get out of the car. To me, those things are no good unless he does them voluntarily. If I ask him to slow down, of course he will (because he's not a jerk), but I want him to want to walk beside me and slow down on his own. My ex-husband is a jerk, and constantly lectured me on how I should walk faster to keep up. I don't want that either, and fortunately, my current ADD husband does not lecture me on my failings. Can you see why I divorced my first husband?
Your MIL is silly to expect you to know what needs to be done. You don't live in her house, of course you don't know. But my husband does live in our house. He's not a hero because he feeds the cats, he knows they need to be feed every day.
I hope that makes sense to you. I do find your insights into the ADD mind fascinating. My husband is not as articulate as you are.
Amen Sueann!! I understand
Submitted by loosing myself ... on
Amen Sueann!! I understand because I have felt the exact same way more times than I care to remember.
Amen Sueann!!! I understand,
Submitted by newfdogswife on
Amen Sueann!!! I understand, too.