C brought up Alexithymia in another post, and holy smokes... it sure seems to be another layer in this insane onion I have been peeling for 7 years. Here is an article about it:
Summary
Alexithymia is a trait that makes it hard to find words for thoughts and feelings. It is experienced by both children and adults and can come in mild, moderate and severe forms. When identified, alexithymia can be treated – with the goal of making feelings and their textures easier to navigate.
http://blogs.scientificamerican.com/mind-guest-blog/the-emotional-blindn...
This talks about that dicsonnecnt between how someone feels - and the inability to EXPRESS those feelings or describe thier feelings. My husband hits nearly every single one of the symptoms. From Scientific American:
Alexithymia is defined by:[9]
- Difficulty identifying different types of feelings (my H - he has never been able to successfully describe his emotions, or understand what he is feeling at the time etc. Its always been very uncomfortable for him to feel emotions of ANY sort)
- Limited understanding of what causes feelings (I dont think he really has any idea of WHY he feels how he does about things, just that he does, and even that he cant really figure out)
- Difficulty expressing feelings (see above, I am pretty sure the ONLY answer I have ever gotten from him is "I dont know, I dont know how to find the words" etc on how he is feeling)
- Difficulty recognizing facial cues in others (He for sure has NO CLUE on how I am feeling about stuff sometimes, and I know he cant tell about others too on a regular basis)
- Limited or rigid imagination (I have often wondered if there is anything inside at all, he never shares anything with me, and from what I can see - is not able to use his imagination to envision success or solutions or anything like that. I dont think he has any sort of "dreams" in the same sense of having goals and visions to strive for - he has zero ambition or drive to accomplish ANYTHING at all)
- Constricted style of thinking (OH MAN... for sure this... he is unable and unwilling to even consider other points of view or other ideas, even things brought up by professionals..)
- Hypersensitive to physical sensations (He doesnt like to be touched. I am not allowed to touch him with out him initiating it. Can you imagine how hard this has been for so many years to not even be able to HUG him just because I want to?)
- Detached or tentative connection to others (I am pretty sure that he would be happiest alone, never seeing anyone unless they are providing him a service of some sort or that he is getting something out of it)
Suddenly so much makes sense. Here is an online questionaire - http://www.alexithymia.us/test-alex.html
I took it using my "assumption" of my husbands answers - some I know for sure, some were guesses. I am confident that i got dammed close to how he would answer and the result was 151 points - a "high alexithymic traits" result.
Here are the treatments that Scientific American talks about:
Courtesy of Deborah Serani
Treatments for Alexithymia
If you love a child or adult with alexithymia, realize that the missed cues, flat reactions or lack of emotional recognition have real neurobiological and psychological origins. Don’t punish, shame or mock their emotional unresponsiveness. Instead, practice patience. Consider explaining your needs in briefer terms, “I’m feeling tired, I don’t want to cook. Let’s get take-out for dinner.” Or helping them label emotions, “You look angry. Is something bothering you?” Help raise their awareness of triggers or stressors that are bubbling to the surface, “You have your SAT’s soon, are you feeling anxious?” Realizing that your loved one may not speak, hear or sense the same emotional language as you can help when conflicts or misunderstandings take place.
If you live with alexithymia, the goal is to strengthen your ability to identify and understand feelings. Teaching yourself about the subjective experiences of others will be important too. Keep in mind that stretching and learning emotional awareness can be a very challenging journey. Here are some ways to broaden your skills:
Journaling: Studies show that expressive writing can be helpful in stretching one’s ability to detect emotions [6]. Generally, it’s recommended to write everyday in a journal, going beyond listing the events of the day. In the beginning this will be hard for those who have thymia. But the goal is to broaden the range of your observations within and outside of yourself.
Reading Novels: The language of describing thoughts, feelings, moments and experiences is literally found in novels. Studies suggest this is a great way to learn expressive language, develop the muscle of receptive language and gain mastery in how to describe a story or personal narrative [7].
The Expressive Arts: Taking a more formal approach with an acting, dance, art, music or movement therapy class has been shown to help those with alexithymia recognize and externalize feelings [8]. Try signing up for courses offered in adult and child education in your town, community programs or college workshops. Consider private sessions with a licensed creative arts or dance movement therapist.
Skill-Based Psychotherapy Treatments: This is a short form of psychotherapy that aims to teach through skill building. Treatments like Dialectical Behavior Therapy, Cognitive Mindfulness Training and Short Term Interpersonal Therapy will teach you how to be more attentive to personal feeling states and how to identify emotions in others [9].
Group Psychotherapy: The interactive aspect of group therapy can offer children and adults ways to explore their own thoughts and feelings as well as experience meaningful exchanges with others. This mode of psychotherapy also deepens a sense of connectedness with others [10].
Hypnosis and Relaxation Training: While most psychotherapies utilize talking as a way to reduce alexithymic symptoms, hypnosis and relaxation training look towards guided imagery and mentalizations to help enhance emotional understanding [11]. Seek out relaxation training workshops in your community, and always work with a licensed hypnotist when using hypnosis treatment for alexithymia.
I posted this hoping that it might help some of us here understand the apathy issues we face. Thanks again C for bringing it to my attention....
Interesting, Stacey. I ran
Submitted by NowOrNever (not verified) on
Interesting, Stacey. I ran onto the subject of alexithymia awhile ago, related to Aspergers. Do I remember that your husband was abused as a child? Early abuse doesnt explain everything, but I'd wonder about its connections with that alexithymia list for your husband. Maybe you and C already talked about that, though
Now,
Submitted by SpaceyStacey197... on
Now,
Yep - he was severely abused sexually by multiple members of his family who were in positions of authority over him. So was his sister. It was very very bad... she ended up committing suicide after years of depression. Honestly, after all he had been through - its a miracle HE is still alive as well. And I do believe that Alexithymia is a very good description of some of his behavior (I mean, like dead on accurate, EVERY single identifying marker accurate). I also believe that he doesnt have genetic ADHD, but "learned" ADHD from using disassociation for coping with the CSA and other trauma (abandonment by parents, father was a really bad guy and who was killed when he was 12, his best friend - his sister committing suicide). I think that his depression is the chemical changes in his body from coping as long as he has with out real professional support and guidance.
He has truly suffered and has NO concept about what control is (self control versus being controlled by others) or what real love is (that in love feeling versus the truth that love is a choice of action) and some majorly warped thinking and magical thinking (that things will just get better on their own, that he can actually escape from all of this now that its out and in his head with out doing the actual work of recovery).
He is not ok - but believes he is. He thinks I am the enemy, because he is so damaged from the monsters that STILL control and taunt him - and I refuse to accept their lies and bullshit anymore just to keep him from feeling uncomfortable. He thinks that he can leave our marriage, leave our home and then be perfecty fine "like he used to be" before he aknowledged the abuse. Its his life, and I cannot make his choices from him - all i can do is watch him and plan my life accordingly.
I wanted a partnership - I wanted to throw rocks at kids from our porch when we are 80 and cranky. I wanted to wake up in his arms every morning that I could. I wanted to see him as my rock in the storm....
turns out his IS my storm... and I am my own rock. And it didnt have to be that way.
Well I sure do ramble! SO SORRY Now! I kinda went beyond your question! Can you tell I am up to my eyeballs trying to make it through this?
Stacey, more chat about alexithymia
Submitted by NowOrNever (not verified) on
That wasn't a rambly post!
Something I'd want to check out myself is whether suppression of feelings due to having been abused is the same kind of thing to deal with, as dealing with ADHD challenges. I'm guessing not, but don't know
Many good wishes, Stacey. You and your husband are in my prayers.
Now
I was googling around about
Submitted by someday someday on
I was googling around about alexithymia and ADHD and found this post.
I have recently realized that my husband has alexithymia, among other neurological differences, after many years of trying to figure him and myself out. It's not just emotional blindness for him though, it seems like a broader kind of mind-blindness, in which he can't even see my to-do list, not just my emotions. But reading about alexithymia helps a lot. I understand very well that feeling as his partner that you have of him just not being all there. And not knowing how to reach him. Not understanding why he does not want to reach you.
I think it's very easy to believe that these issues are rooted in childhood trauma. Certainly I believed that for my husband for many years. And in your husband's case, he has lived through heartbreaking, unimaginable trauma.
But it's clear to me that my husband's issues are innate and organic to him. That he's never been another way. It helps that my son is like this too, and I know nothing happened to him.
My son and husband both have sensory processing disorder and slow processing speed. My son's versions of these are diagnosed; my husband's are not. It seems to me that all of these processing issues are connected, that the emotional processing deficits are linked in some way that is not yet understood to the sensory and intellectual processing. It presents quite differently from ASD, though so many of the symptoms are similar.
So I wanted to suggest that you consider that maybe this is just who your husband is. That he may always need and process things differently. That the reason he doesn't like to be touched may not be just because of trauma (if he's a picky eater or sensitive to noise, that would be a giveaway that it's more than just a sexual abuse issue). And that no matter how much targeted therapy he gets for the trauma, it won't change who he is. Because who he is may have been there all along. And may require a different set of therapeutic strategies in order to live in a world or in a marriage that was not built for the way his brain works,
Best of luck on your journey.