Recent forum posts (all topics)

  • After disaster, trying a new approach to ADHD- a medical food! by: tiredmomma1 7 years 7 months ago

    I have a teen with Autism and ADHD and various health issues like causing most of these labels. While he has done well on Propanolol for anxiety and aggression, he still struggles alot with ADD/ADHD type symptoms. We were going to try out Strattera for him, but since we hadn't hit our insurance deductible it was going to cost us $400 plus per month, which is ridiculous. Strattera doesn't even have the best reviews and he cannot tolerate stimulants and Tenex had limited effectiveness for him. 

    I signed him up for an executive functioning class for teens, in hope it would give him enough skills to overcome some of these deficits. It turned into a disaster. Due to being on an inhaler for the effects of a lung infection he had to stop his Propanolol. The other students there were, according to their parents, on high doses of Concerta (Tenex at night when it wore off) and thus could sit and focus. The instructor ended up getting so agitated by my son's restlessness that he threatened to strap him to the chair, and allowed the other students to add in that they should tase my son. My son stormed out of there and when I confronted this teacher he claimed it was all a big joke and my son should know that as he is in junior high now. Needless to say, I filed a complaint and gratefuly the center addressed it. But it scared me how his symptoms getting out of control put my son potentially in harms way. 

    We've had success with Vayarin, a medical food for ADHD, with my other son who has the same medical issues and combined ADHD diagnosis from our Neurologist. It's helped with some of the younger son's defiant behaviors, so I am hopeful we see improvement for this child as well. I just want him to be able to control himself, focus, and take part in all life has to offer. After seeing how untreated ADHD is affecting their father's life (no follow through on projects, has to go to extremes with continual activities just to function and self regulate to the exclusion of family) and has wrecked my marriage, I have decided to do whatever I can to get my kids the help they need so they don't struggle in the same way.

  • Yet another screaming argument by: redhead1017 7 years 7 months ago

    Or rather, yet another screaming monologue with me standing there being yelled at and cussed out in front of our kids. 

    I have a special needs adult son who asked Dad this morning if he could go buy a video game he's been saving up before school on Friday. He said no, they would go after school, and Henry got upset. Rather than encouraging his special needs son to slow down and think of alternatives, DH just got loud and started arguing and yelling. I'm getting ready to go to work, I'm not hearing the discussion until they both boil into my room yelling at each other. I immediately told them to stop arguing, stop yelling, so I could ascertain the issue. I got my son calmed down (btw he's like 4 years old mentally, you're not going to win an argument with him, you have to try other tactics, as I've told my DH like a million times). 

    As I'm going out the door I mention that yelling never works, and that instantly triggered him into a full blown screaming fit at me for 10 minutes, cussing me out, telling me I treat him like a child (if the shoe fits), that there is no other option to deal with things other than yelling and arguing, etc. I just stood there and let him yell at me for 10 or so minutes, my son was screaming in the background, and my daughter came out of her room crying. 

    So yeah this is not the first time this has happened, more like the millionth time. I let him treat me like this. I enable his behavior by allowing him to continue to treat me like this. I've shown my kids that it's okay for people to treat them like this. 

    I want him gone. ADHD is a monster. I see nothing positive about it. I've read all Melissa's books, and I've tried all the tactics, and nothing ever works. 

    I would love advice on how to move forward - how do I tell him I want him out. I don't want to be screamed at but he's incapable of discussing anything without doing that - which is why I don't talk to him about anything. 

  • There are no happy memories to reflect on in our marriage. by: tiredmomma1 7 years 7 months ago

    Just realized that there are no happy memories in our marriage to look back on. At least not for me. He left me to handle an impossible load all on my own with our family. And I do mean impossible. I have health issues of my own that have affected me significantly. Both of our kids were diagnosed with PANDAS, a form of Autoimmune Encephalitis. One is on the Autism Spectrum. This means sick children with major behavior issues. I have always had to work, manage all their care, the bulk of the house, medical issues, the school and SPED paperwork/meetings, etc. For years he came and went as he pleased, worked full time and barely managed to pay the bills. He was constantly gone with activities, friends, masonic Lodge events and meetings/fundraisers. It seemed anything he could do to avoid going home, he did. I had no support, literally. From time to time his parents would watch the kids when they had a day off school and I was working. That's it! with my health issues and the kids' issues it has been impossible making and keeping friendships, so no support there either. My oldest has constantly been denied government services, despite being pretty ill most of his life (he is spectrum kid). Most of my life has been working all day, no vacations for years (saving all my PTO for kids needs- doctor's appts, sick days and school days off, etc.).  I never get a break, to be honest. For years now I have worked all day, came home and took care of the kids. A few years back my health started to decline because between a high pressure job and two kids with severe behaviors- self injury, rages, property destruction, ODD behaviors, anxiety, depression, I never got a moment to rest or relax. Found out two years ago I have neurological damage and chronic infections- autoimmunity that has gotten pretty bad. He was literally gone 4-6 days a week, nights too, with work and various activities, even though he knew how bad things were. A discussion with my spouse made me realize all he remembers from this time period were the fun times he went through, while I was enduring a never ending hell. The fun times for me? There were none. All I remember are the  good moments with my kids, things we did together. There was nothing good with my husband, just a memory of him either being home and miserable- snapping impatiently at everyone or ignoring us or being rude to me, or him being gone all the time. How do you stay in a relationship like that? I realize now I was enabling him for so many years. But even when I stood up to him, when I argued, asked and pleaded with him to help out more or be home more he refused. Saying he needed all these activities as his own form of therapy. When I mentioned this morning to him I haven't had a vacation in years and he has, he goes "I make time for it myself and you don't." How can I, when i have to work and all my PTO goes to taking care of his kids? I cannot quit my job as it looks like one child will need costly medical treatments due to declining health he has. No matter what, I will continue to take care of my children. It's just sad there is no connection or good memories left.

  • ADHD & BPD: by: heartsinpain 7 years 7 months ago

    Hello all. Well, I have spent a lot of time on this forum, read the book, and frankly, it has gotten me no where! lol! (Not the forum's fault by any means). After my souses' adhd diagnosis, and drug variety, we were left devastated. I think he believes that the adhd (and all that comes with it) is why we are "too different". The more research, the more drugs, the more people he met with adhd, the worse our relationship got. I was never "doing the right thing" or I was "always out to hurt him". There were serious rage/ anger issues that were unpredictable, frightening, and abusive. They began to happen more and more often. I felt like I was being treated as the "enemy" . I got so confused, didn't know which way was up or down, got depressed, and just felt completely lost. These didn't seem like normal adhd couple issues- we were beyond the chores, etc. I actually had to leave because it was so bad, and we are now no longer together.

    I've done some research, and have found out that there are actually many similarities to adhd and boarderline personality disorder symptoms. Also found out:

    It is not uncommon for children, teenagers and adults with borderline disorder who have some symptoms of ADHD to be misdiagnosed with only ADHD, and then receive customary treatment with stimulants such as methylphenidate or an amphetamine derivative.

    If borderline disorder and ADHD co-occur, patients often do worse when treated for ADHD if they first receive a medication for the symptoms of ADHD. Under these circumstances, they may then demonstrate an increase in emotionality, aggressive impulsivity and even paranoid thinking.

    Attention deficit hyperactivity disorder (ADHD) occurs in at least 25% of people with borderline disorder; 5 times more often than it does in the general population.

    The more I researched bpd, the more all the pieces seem to fit together. The "black and white" thinking (considering me the enemy), the aggression and inexplicable explosions, the list goes on and on. I was wondering if anyone has had a similar experience where aggressiveness has gotten worse with the adhd meds, and led thoughts in this direction. Any help or guidance would be greatly appreciated, because I am still very deeply in love with this person, care about the tremendously, and don't know what to do.

    Thank you.

    *Not sure this is posted in the right forum

  • Spouse has ADHD and I am now depressed by: SunSpot 7 years 7 months ago

    I did not know he had this for the first year we were together, I just knew he had organization, memory and other issues.  I accepted and blew it off.  I'm a type A Personality so it was not noticed as much.

    However, things started falling apart in our lives.  Illnesses, death of family members, job losses, and his condition really came to the forefront because I needed him to help more.

    Garbage  that is sprinkled around the house that never makes it in the garbage can, paperwork that never gets filled out, clutter and the complete and total lack of consideration for our belongings has left our house a total disaster and me very depressed.

    I am so overwhelmed.

    How can I do the things I am planning on doing if I can't even keep up with the house is a question I ask myself often.

    Then I found an article a couple years ago.  The compulsive lying, the zoning out when trying to talk to him about important things, the losing things non stop and total failure to be accountable but instead blaming me or saying he is dumb or a bad person....  it all snapped in place.  He is not a partner.  He is a child I take care of.

    I really don't know what I'm going to do yet.  I read this stuff about people on medication still having issues...  I just don't think I can do it.  He is resisting me on getting meds, too.

    I've never been depressed.  Usually really positive but living with someone with this condition is like a black cloud hanging over me.

    Does medication really help?

    Is it possible to accomplish much if you are with someone with ADHD?

    is there ever a time you are not taking care of them like a child?

     

    Thank you for listening!

  • Needing major advice.... by: Ntsouk1008 7 years 7 months ago

    Good Evening.  I am hoping that someone will be able to relate to my story and offer me some major advice.

    Here is my story:  I have been with my husband for 30 years (high school sweet hearts).  About 2 months ago (after speaking with a friend with ADD), he decided to go see his PCP for what he is recognizing as a long history of "inattention".  This was news to me and I was pretty confident that he didn't have ADD.  I encouraged him to follow up but really didn't make much of his appointment.  This led to a neuro-psych eval and ultimately the diagnosis of adult ADD.  I was SHOCKED and BLIND SIDED, and for some reasons I cannot understand, felt betrayed.  We have had an amazing relationship over the past years (ups and downs like most people), but I would describe our relationship as "rock solid"; I don't see ourselves, our relationship, our history as what I have been reading in the many many articles, books, blogs, etc that I have read.  Since he began this journey I have had an amazing amount of anxiety (new, lost 12 pounds in 3 weeks), and have been in emotional distress.  I have read every single piece of information I can get my hands on at all levels (lay terms and medical - I'm an NP), but everything "speaks" to the spouse or the relationship that is in distress because of ADD; this was not my situation.  For reasons I cannot describe, and praying that someone has gone through this before and can tell me their story, I am absolutely terrified of him being treated with medication.  I am afraid medication is going to change his personality, our relationship, our life - a life that I love.  I have committed 100% to supporting him in this journey and recognize that this is not about me - but this has thrown me into a whirlwind of emotions that I am having a very difficult time understanding where this is all coming from.

    Would really appreciate anyone who would be willing to lend me some advice if they went through something similar, and how are you now?

    Thank you for taking the time to read,

    NT

  • (Former) Partner with ADHD "Can't Form Personal Connections" by: PoisonIvy 7 years 7 months ago

    Those are his words, but I believe they're accurate.  He told me this weekend that he knows this is true because he prefers sitting with his mom, who has late-stage Alzheimer's disease and can't process communication, than being with his dad (and, presumably, with me). In a way, this doesn't matter anymore (we're now divorced), but it still hurts.  I wonder if he ever told any of the several therapists he visited over the years that part of the problem was his inability to form connections and it wasn't only my fault that our relationship was rocky and his life wasn't going well.

  • Is it ADHD or just bad attitude by: Murphy 7 years 7 months ago

    I have an ADHD partner who seethes with anger  when reminded about any mess. It doesn't matter if it is said nicely. She blows her top and accuses me of a lot of things that in the end everything is my fault. Sometimes she makes me feel like a monster by saying "ok, me and my son will just find a place tostay where we can leave without anyone dictating to us". I used to tell her that there is no need to be defensive because what we are trying to do, is normal. Keeping the house clean is a normal activity, it is not oppressive. She is very defensive about her son so I never ever ask him to do anything or reprimand him. The problem is, the mother does not either. There will be candy wrappers on the floor sitting there for five days and no one picks it up. I leave it there so they can notice it, but it stays there.  

  • How to take care of the little things? by: Anonymous (not verified) 7 years 7 months ago

    Hello everyone,

    This is my first time posting on a forum like this, but this site seems to have more balanced views rather than a lot of the ADHD bashing that goes on in a lot of other forums.  For context, my situation has been a bit different than most of the ones I read about in that my partner was diagnosed with ADD as a child.  He was upfront with me about it and that he had not been receiving treatment since high school, but did not tell me much about what ADD was.  After 2 years of dating that I've spent scrolling through these kinds of forums (because advice for relationships with non-married ADD partners seems nowhere to be found), I'm starting to understand a lot of the burn out people are having.  It should also be noted that I have mild OCD which--when I'm stressed--obviously can get much worse, and becomes easily aggravated by disorder. (I'm sure you can see the start of the problem).  Since we have been dating my ADD boyfriend has gotten on medication that has been effective, but has refused to find a therapist, and refuses to take his medication for any time but work and it wears off soon after he gets home.

     

    We have been living together for the past 10 months and while he is a sweet, loving boyfriend, he is a horrible roommate.  I have managed to make the most important things like bills very easy and he is on top of it, but I cannot for the life of me find any way to get him to do chores without being prompted.  The only chore he will do without my asking is the dishes.  He does not spot clean, he will not gather trash from the house, just whatever's already in the kitchen bag, I have experimented and he does not even notice when there is grime on his sink in the bathroom.  I understand that not noticing or doing these things is a part of ADD.  But I cannot make every decision and delegation every day.  And as I continue to have less and less time to spend at home cleaning I am worried that I will continue to come home and just find a pig sty, as it has been these past few weeks.  Things are messy enough right now that the sheer stress of being surrounded by it when I get home at 8 or 9pm leaves me with no energy to clean, but also unable to sleep.  I've only been able to get about 3hrs a night, and am approaching my wit's end.

     

    Despite this, today I made huge headway in potentially getting a job doing event planning and generally helping flesh out the internal system of a young non-profit.  But if I get this job (or any job I'm qualified for, most involve these kind of things) I'm not going have the energy to plan every single date just because he "has no ideas".  I'm not going to be able to handle coming home and not being able to even make myself dinner because the counter's are strewn with the packaging of the instant meals he eats when I'm gone.  I've stopped being mildly annoyed by him not taking care of his own things and started to get aggravated.  And I have expressed this, calmly, succinctly, with him explaining back to me how he's interpreted what I said and how he feels about it and what he'll do, etc........And then nothing happens.  He still knows I'm stressed, and I'm angry, but it's like his ADD just magically makes him forget why I can't relax now when I'm home and he just gets upset that I don't want to hold hands or snuggle etc.  If I try to tell him when I'm feeling emotional about it, no matter how simply I tell him, no matter how nicely I try to phrase things, he cries.  Whenever I get upset and express it he just cries.  And I know it's just some kind of weird knee-jerk reaction, but it makes me even more upset, and I end up avoiding talking about things for the 3rd, 4th, or 5th time.....

     

    At this point, I don't know how to get him to do anything without feeling like a bitch beyond just putting signs around the house.  Which he's told me to do...but whenever my OCD is really really bad, categorizing and organizing things is what I do.  Just thinking about it is a very negative feeling for me, so I have asked him to work to find a way to manage it for himself.   And he just doesn't.  I can't even get him to do fun things of his own initiative, like set up the new computers he wants to use.  I don't know what to do anymore.  He hasn't been this bad about chores until recently (I had a friend who's over frequently verify, since I know my OCD makes things seem worse than they are) and if things continue getting worse like they have been, I don't think I can stay in this relationship.  But if I can't have a constructive conversation with him that he remembers, what am I going to do?  I don't want to treat him like a child.  I just want him to act like an adult and take care of his responsibilities.  I'd like him to treat them like responsibilities instead of random things I ask him to do.  All advice and experiences are welcome.  Thanks ahead.

     

    tldr; OCD girlfriend with ADD boyfriend.  ADD boyfriend has been progressively ceasing all chores and self-sufficiency over the past month, causing inordinate amounts of stress and insomnia while I am job hunting.  I have talked with him about it a few times and it gets "forgotten", leaving him wondering why I'm angry and don't want to be affectionate.  Please help.

     

     

  • Hoping to Create a Plan by: WhirledPeas 7 years 7 months ago

    I'm new to this forum ...I hope I'm posting in the right place.

    Ive been married to my ADD diagnosed spouse for 3 1/2 years. He was diagnosed many years before we met. Unfortunately, I misunderstood what I was getting into. He told me about the talking, and a few other symptoms but I was devastated to learn that he is unable to tolerate everyday noises made by families in a house. Because of his upbringing he is VERY rigid about everything...so for example...if the kids walk louder than a tiptoe, he shouts at them for being "disobedient". His anger fuses are getting shorter by the day. Today, I am overwhelmed by the bigness of our marriage problems. My heart aches. Actually my whole body aches. Im soo tired. 

    Ive been reading every chance I get on this forum and others, trying to learn.

    We have all the typical issues going on but I'm really ok with most of them.

    I can adapt to messes, forgetfulness, talking and more. 

    The main  things that are crushing my soul are these:

    1. His anger and rage esp at unpredictable times.

    2. His extraordinary impatience with my children ( who are very well behaved by most standards... except perhaps by extreme Patriarchists.)

    3. His disinterest in intimacy. Pretty much zip.

    4. His inability to carry on a conversation without taking offense..no matter how carefully I try to word something. 

    I long to work out some things, but he gets so defensive and accusatory to me that we dont ever make progress. He deeply believes that I am against him and that my kids are the source of all his unhappiness.

    I was so excited when I got this job last year because it provides living space including a cute little building for him to have as his "own studio". He's a genius musician/composer. The problem is, he filled it up, made a mess...and hates to go there now. I was so hoping if we gave him his own space he would stop making daily life so scary for us by going to his space when he finds us intolerable ( stuff like talking, humming, walking, opening doors, etc..will drive him up the wall). This walking on eggshells thing is more than exhausting. He doesn't allow for the children to be...well...children.

    About the anger: the last time he lost it big with me was about a week and a half ago. I was standing in front of our bedroom door in a narrow space and he was so angry & desperate to get away from me that he shoved me so hard I lost my balance and fell. His first response was to mockingly say "oh stooop iit!" He assumed I was faking. A few days later ( when he returned and we spoke again) he noticed the big bruise on my arm. When he asked, I told him it was from that fall. He never apologized.

    After that,  I feel most urgent to set better boundaries and protect us from any more anger "accidents". 

    The issues are so overwhelming that I can't even begin to delineate them here...esp in one post.

    I guess maybe Im just reaching out here to see if these problems really are ADD related...are his actions common?

    Ive been teary today. He accuses me of shutting him out but I dont see any other way to "get along". He is never not angry anymore. I love him...i miss the guy he used to be.

    Because of his repeated anger episodes, I have started separating our finances better and i keep the kids away from him as much as possible. He sees all this and gets hurt and more angry.

    Re: the household.He seems to be an all or nothing person. Eg: "Dont like the way I organized the chores for the kids? Then I refuse to participate in any chore oversight."

    He screamed at me for washing a load of clothes once..claimed I destroyed his plan... and pretty much refused to do any more laundry ever (except his own). Is this an ADD symptom?

    Just hoping someone will shed some more light...have a kind word, a prayer...anything really. 

    I am thinking of asking him to move out until he can gain ground by seeing a therapist or doctor. I can hardly bear the thought tho' . He'll rage at first...but I know its because he hurts and thinks I am against him. Im not....but I have children to raise and protect.

    TIA

    Alone. Sad. Confused.

     

     

     

     

Pages